Work/Life Balance; Will it Work?

John is medically retired due to his TBI and disabilities. He has not held a job for about 14 years. We decided to have a child well after he was retired. We knew when we were making that decision that he likely would struggle with the taxing nature and amount of time and patience it takes to raise a child. We knew we would face some unique challenges with him as a dad having a TBI but were not fully aware of what those might be. When we had Eva, I was working full time; a typical 8-5, M-F job so we had to have childcare help. Because of John’s disabilities, he was unable to take on the responsibility of being a full-time dad to take care of Eva at home all day long while I was at work. Even though stay-at-home parenting is not a paid job; it most certainly is a job and a very time-heavy and demanding job at that. John cannot multi-task; he needs mental breaks every couple of hours, if not more; he cannot make quick mental shifts between topics; be interrupted; handle loud or repetitive noises; and so on.

Now that I am finished with school (thank heaven), I am working full-time outside the home again. Now, Eva is in elementary school and not in daycare. She is older and therefore more self-sufficient but still quite demanding. She is a lot like the character Stewie in the Family Guy when he approaches his mom and says in rapid repeat, “Mom, mom, mom, mom, mommy, mum, mama, ma, ma, mom, ma, mommy!!!” and his mom, Lois finally says, “What!?” and he responds, “Nothing…ha-ha-ha” and runs away. (<a href="http://<iframe width="560" height="315" src="https://www.youtube.com/embed/aOLxQGLJouI?si=pEkzbS86A7yxhbGL&quot; title="YouTube video player" frameborder="0" allow="accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share" referrerpolicy="strict-origin-when-cross-origin" allowfullscreen>Check it out.)

My work schedule now has been wonderful for work/life balance. I am lucky enough to have a boss who listened to my needs for my family life paired with my desire to have a successful career and worked with me to find a schedule that would benefit her and me. I work 6 days on (12 hr shifts); 8 days off. It causes a whiplash effect that we are still getting used to. I am not complaining. It is simply that when I return to work for what I call my “on cycle,” it feels like I am returning to work after a vacation. My first day back is always as if I am shaking the dust off. I am a little off my game. By day 3, I am beginning to get tired but really getting into the flow. By day 5, I am rockin’ and rollin.’ Day 6, I am ready for a break but also feel like I could go longer because I am so into the groove.

This is great for me when I am wearing my work hat. With my mom, wife, daughter, and friend hats though; it can be trying while I am on my on-cycle. I have found that when I am working little else gets accomplished because I am in full on work mode. The house gets progressively more and more messy as each day passes. I struggle keeping up with text messages from friends and family. Eva gets behind on reading and homework. John gets consecutively more tired as each day moves along. By day 3, he is into a fuzzy brain day. He can sometimes maintain a fuzzy brain day until day 6 but it is a very slippery slope. Very little at those times can push him into a bad brain day.

Knowing that I have a huge reward of 8 days in a row off is the gargantuan carrot on the stick. When it is my “off-cycle,” I can generally be 100% mentally off. During the off-weeks, I can fully be everything else. Work then takes a back burner, and my family and personal life are filled.

I sometimes ask John if my full-time work as a nurse will be something that he can sustain. I worry that he may not be able to. I wonder if I will have to make further sacrifices. When I really have moments of darkness and I am more emotional, I think inside my head stuff like, “Will I have to go part-time? What will that mean for benefits? Will my current employer continue to work with my needs? What can I do different to make this work?” That little voice in my head, which can be so loud at times, even tells me things like, “Maybe you should just get a little job somewhere with low hours.” Of course, this is not what I want and when I have times like that I often fight back with, “No, that is not acceptable. I don’t want to have to give any more; sacrifice anymore, etc.” It ends with, “It will work out. We will make it work and figure out a way.”

John agrees with me most of the times that he does not want to ask me to sacrifice anymore. He will also say things to me like, “I don’t know if I can do this shift anymore.” I really just keep hoping that he will be able to find the way to manage this because we have also realized that any schedule I might have will be a struggle in its own way. I would not say that we are at an impasse but it is a time of contemplation…a sort of time will tell.

We always find a way to make things work. I am so, so, so happy with my job now though. If I have to give on this because of a lack of energy from him; I think it will be very sad. I just hope that it doesn’t come to that. This has brought up other and new worries from me about him getting older and changes that may occur with his health and TBI with age. What sort of sacrifices will I be asked to make that I am not even expecting? But, I suppose a lot of that is starting to play the “what if” game and that could drive a person crazy.

Starting Again

It is hard to believe that it has been 2 years since I last posted. It does not feel like it has been so long. I posted in May 2021 that I was about to embark on a new career as a nurse. The first step of that journey was starting nursing school in September 2021. I am happy to report that I successfully completed the program with a Bachelors of Science in Nursing this May (2024). I obtained my Registered Nurse license in the same month.

Since then, I have been working as an RN in homecare in my local community. It has been amazing. I know that I have found my purpose in a career. It is rarely easy but I go home at the end of each shift knowing that I have done something good. My work has meaning to others. The ability to help others is tremendously rewarding and fulfilling.

I posted here a couple of times since the loss of my father but that was a huge event that occurred, in February 2022. It was something that I had to repress and place on the back burner in order to get through nursing school. I feel like I still have not fully processed the grief and loss of my dad’s presence in this world but it’s also something that I find it difficult to approach now. Grief is complicated. The feelings well up at unexpected moments. I miss him.

Thank you to a reader for finding this site and messaging me a couple of days ago about her search for a like-minded community and camaraderie. Her comment has inspired me to keep posting here. Soon, I will post again and get this ball rolling as it pertains to TBI stuff with my husband. A great note: in May (a big month), we passed our 19-year anniversary of being together. It has been 14-years since the accident that set our lives on this TBI journey. We are going strong.

The Family at Yellowstone National Park, October 2024

Shingles Vaccine

Two days ago at 11:00 am, John got his second shingles vaccination. Within an hour or so of getting it, his arm hurt so bad that he could not lift it. We thought the nurse had given it too high and hit his bursa or shoulder socket instead of his muscle. Then, by the evening, he was warm to the touch with a low grade fever, had some chills, and was totally miserable. He did not sleep well and actually hallucinated in the early morning hours the next day.

The hallucination was annoying and funny. We were both asleep. Well, I was sound asleep and dreaming. John was trying to sleep but had not slept well all night. Suddenly, I was awoken by John saying to me in a loud, clear voice, “You know, you’ll go blind if you keep doing that.” It was shocking and totally roused me from sleep. After a few moments pause, getting my brain to comprehend what he had just said and figuring out that I was awake and not dreaming; I replied, “What?!”

There was another long pause after which he said back, “I thought you were reading on your phone.” (Note, I am as blind as a bat without my contacts in or glasses on. I do not sleep with my contacts in so everything is fuzzy. I am nearsighted and can only see something clearly if I have it within a few inches of my face. There are times when I will read my phone for a moment with it like that but do not do that for long.) He then started to realize that I had been asleep and had not been reading; that he woke me up. He apologized.

Yet, the damage was done. I was unable to get back to sleep. It was doubly annoying because the previous morning I had woken myself up at 4:30 am and not been able to get back to sleep. Of course, after this he was able to fall back asleep. (Sigh)

John tends to have a high sensitivity to medications as well as to vaccinations. I have not done research on this but I do wonder if it is not caused in part from the autonomic disregulation he experiences because of his TBI. We do not often take similar medications but when we do, he takes a lower dose than I do. He is double my size. It has always struck me as sort of odd.

Has anyone else with a TBI also experienced this with the shingles vaccine or with other medications?

The good news here is that I was able to get a good night sleep last night. I was not woken up by the husband, the kid, nor the cats. Yay! (Hey, it’s these small things in life that matter.) 🙂

I hope everyone is doing well. It was a chilly morning today…16 degrees F. Winter is upon us here in northern Utah I am afraid.

Caregiver Support Group (VA)

For my readers who are connected with the VA, are married to a vet, or are themselves a vet, did you know that there may be a caregiver support group near you? I just learned of the group near me. I have been to one session and plan to go back. It might be something worth looking into for yourself.

My husband goes to a regular counseling session. He sees a licensed clinical social worker (LCSW) through the VA system. This helps him relieve stress and helps him norm reference. He is around so few people on a regular basis that he wants to make sure his thoughts are within a normal, healthy range. His LCSW recommended the support group to me as a place I can go to be with other spouses, I believe mine is all women but I am not sure about that, who are married to combat vets or those that have injuries enough to where we are considered to be caretakers. These women have similar experiences and day-to-day struggles, worries, and joys. They have families and jobs and spouses who are injured in some way.

The group near me meets one time per month for an hour. They are enjoying each other and the group so much that they are organizing a second, less formal, lunch date for a second monthly meeting. My group meets about an hour drive from me but, I found that the drive, in the car by myself (a luxury I do not often get these days), was therapeutic in-and-of-itself.

Go to the VA Caregiver Support Program for more information.

Our Story

I have not yet shared how my husband got his TBI or more details of our story. Here’s to resolving big chunks of that. 🙂

One Sunday evening in early 2010, my husband, John, left the house for work. It was an evening like many others that we were used to at that time. We had dinner together, gave each other a hug and kiss, and he left. I stayed home to end my day and get ready for the work week ahead. I knew he would give me a call later in the evening to say goodnight, which was our routine.

John was a police officer in the DUI (Driving Under the Influence) unit of a large city police department. He enjoyed what he did in the sense that he knew he was making a difference with each intoxicated driver he got off the street – potentially saving the life of an unknown person who might get hurt by the driver. Because he was in the DUI unit, he worked nights, leaving the house just after dinner and getting home around 6:00 am the next day. I worked an office job, 7:30am-4:30pm.

On this night, his traditional goodnight call was late in coming. It slightly worried me but not too much. Sometimes he would get busy and we’d skip it. I was about to go to bed when I got a call from him. When I answered, I could hear other voices and commotion in the background. He said something like, “I’m okay but I’ve been in an accident.” As I began to ask questions and he was trying to answer, I heard a voice in the near background say, “Who is that? Your wife?” Then, the phone was jostled and I was speaking with a different man. He said, “Are you his wife?” After confirming, he said, “I am a paramedic. Your husband has been in an accident. We are taking him to the hospital.” I think I got some quick answers like, “He’s okay. He’s talking. No broken bones. Don’t come to the hospital.” I was told not to go to the hospital because he didn’t seem that bad, we lived a long ways from the hospital, the roads were snow packed and icy, and it was Super Bowl Sunday. It wasn’t worth the risk.

I did what I was told and didn’t rush to the hospital. But, as the minutes went by I began to say to myself, “Erin, this is crazy. You need to be with him. Just go and drive slow.” I was about to change out of my pjs into clothes when I got a call from John’s sergeant. He told me that John was doing well and that the doctors were expecting him to be released later that evening/early morning. He told me that John was talking, joking, and laughing with his co-workers and the medical staff. He reiterated that I did not need to go to the hospital. That I should stay home, try to go to sleep, and the guys would get John and his vehicle home later that evening. After that call, I felt better and did in fact go to bed.

John got home later that night, as planned. I woke up and helped him get to bed. He was walking and talking on his own; all-be-it obviously high on pain medication and moving slowly. He went to bed and I went back to sleep too. I woke up a few hours later and, as absolutely insane as it sounds now, went to work. I knew John would be asleep for most of the day and that he’d call if he needed me. I left him water, some snacks, and other items at the bedside. I did end up going home early that day, much to the caring urging of my boss. God bless her, she probably still looks back on that day and is perplexed as to why I was there. All I can say is that I was the wife of a cop. I saw it as part of my job to be strong for John and to realize that his line of work had a high likelihood of him getting hurt or other issues. This was the first time he had come home so injured but it was not the first time I had received a convoluted or frantic phone call because of line-of-duty matters. It’s not that I don’t care or am cold; I just have a very systematic way of dealing with stressful situations.

Here is how John got hurt that night.

John had just gotten onto his shift and had pulled over someone he suspected of driving under-the-influence. I say intoxicated instead of drunk because it is an important distinction. John would pull over drivers who were drunk or high on prescription, non-prescription, or illegal drugs, or, for texting or otherwise distracted driving. I think there is a misnomer about thinking DUI cops only deal with drunk drivers.

Getting back to the story, I will call the driver John had just pulled over, Sam. John pulled Sam over just past a traffic light on a busy thoroughfare out of downtown. It was a one-way street with 4 lanes and street parking on both sides. The speed limit was around 35 mph. John parked his patrol car, lights on, about 3 car lengths behind Sam’s vehicle. Sam pulled over a few feet behind a parked vehicle on the road. John had just gotten Sam out of the car to initiate roadsides. Roadsides are the battery of tests police officers give to drivers suspected of being intoxicated. John was starting to work with Sam when John happened to look over his right shoulder, up the street, in the direction of oncoming traffic, and saw a vehicle careening towards them out of control and at a high speed. I will call the driver of this vehicle Matt. John yelled at Sam to run but Sam didn’t understand. John picked him up and ran, carrying and pushing him to safety. He did this by running between the parked vehicle and Sam’s car. We are unsure exactly what happened but we think that John’s left leg was extended behind him as he was just about to clear the “fatal funnel” between the two cars when Sam’s car was pushed forward into the parked vehicle and, in the process, hit John. He was thrown into the air, spun around, and hit the wall of the building across the sidewalk about 6′ up with the left side of his body and then fell to the ground. Sam was safe.

Matt ended up being high on cocaine, weed, and drunk. He was driving about 60 mph down the one-way road, hit an icy patch, lost control of his car, and rammed it into the back of John’s patrol car. This propelled John’s vehicle 3 car lengths forward, into Sam’s vehicle, which pushed Sam’s vehicle into the parked car in front of it. It’s a good thing John was not in his vehicle when the crash occurred. The engine block would have been in his lap. Matt was not significantly injured.

John remembers waking up and seeing where he was at and thinking, “Get up. It’s not your time.” He looked around and used his radio to dispatch to call an ambulance. Come to find out an ambulance had already been called. One of John’s co-workers saw the accident occur and had already called it in. We think that this fellow police officer saw Matt coming down the road before John did and had hit his air horn on his patrol car. This loud noise alerted John and may have been why John looked over his shoulder at the oncoming traffic. John’s memory of this is fuzzy though and he is not sure.

John doesn’t really remember that night. As the days passed, we realized that he was bruised and banged up physically but able to seemingly function otherwise. He was back at work. He was forgetting things and irritable but we figured that was the pain medication he was still taking and just the general recovery process.

Honestly, the few months after the accident are kind of a blur to me too. I remember John starting to get really snippy and grumpy. The day after one particularly bad night, John had an appointment with a new therapist. He’d been to numerous doctor’s appointments at this point. He wasn’t sleeping well, was forgetful, was loosing track of things, and irritable because he couldn’t understand what was still wrong. Why he wasn’t snapping out of it. That day, he was meeting with an occupational therapist and speech pathologist, who ended up being a life changer for him and for us. We are still friends with her and with one of the neurologists he began seeing then.

John came home after that appointment with a set of papers that said something like, “You have a TBI if…” and listed a number of symptoms. John had nearly all of them. Both of us had this ah-ha moment of “my goodness, this is what’s been wrong!” The very next question was, “Okay, how do we fix this then?”

Well, that was both the awakening of understanding but also the awakening of realizing that there was no fixing this or making it better. At least in the sense that John was not going to be able to get 100% better. This was, forgive me from all those who understand these dreaded words, a new normal. A new reality for John and for our lives together. It would be many months later before we really comprehended the sacrifices we would be making or what this new reality meant. It would be many months later before we realized there was no overcoming this.

John later learned that this TBI was the proverbial straw that broke the camel’s back. He had received many, many TBIs and concussive incidents while he was serving as a Marine. Each time he was flash banged or knocked out, which occurred frequently in his training and duties, he received a small TBI. These culminated to the breaking point with the one he received in 2010. I like to think of this as similar to professional football players or boxers. They receive enough hits to the head and eventually there’s no turning back.

John and I have been adapting to his new normal for over a decade now. He has stabilized but new things come up – both good and bad. As the medical field learns more about brain injuries new tools, medications, and so on usually improve things for John. It has been frustrating at times to learn that John has injuries he received that day that were missed at the time but haunt him. Many months after the incident we learned that John had a broken neck for instance. He has had a shoulder surgery to correct his scapula which winged out afterwards. He had that surgery roughly 5 years later. He takes a lot of medications and this has an impact on his blood pressure and kidney functioning. As he gets older, he has a greater risk of developing Alzheimer’s or dementia. One good thing that happened a few years after the accident, when we thought there would be no more improvements, was that he relearned the ability to do math in his head. He’d had this skill pre-TBI but had lost it. His brain found a way to do that again. That was a win.

It is not all sacrifice. We have a daughter now, largely a decision made because of the injury and after he was medically retired. I’m not so sure we would have decided to try for children if he hadn’t been retired. I get him home now. At first, I was worried about this because I had been used to having large blocks of uninterrupted time alone which I relished. But, it works for us that he’s home now. We get to spend more time together. I no longer have to worry about him leaving the house each night to work as a police officer and put his life on the line for the wellbeing of others. In an odd way, we both believe that even this bad thing happened for a reason. It forced John to slow down. It also forced me to slow down too; although, those who know me probably don’t agree with that. I like to stay busy.

Please let me know if you have questions or anything to add.

Adventures with the Public

It has been awhile since I’ve written. It’s not that things haven’t been occurring in our TBI world. It’s that I start feeling like a broken record when I post, especially about repeated topics or instances. I do not want to bore anyone reading. Today, a few things happened though that I think worth sharing. Well, one happened today and the other I just heard about today but it happened a couple of weeks ago.

The first happened today at the local WinCo. My dear husband was out running some errands and stopped at the grocery store. (See my previous posts on the trials and tribulations of grocery shopping.) John was sniffling and coughing (allergy related) and was not wearing a face covering. (I am not getting into the rights and wrongs of mask wearing or not. He just wasn’t wearing one.)

He made it to the line to check out and a fellow shopper who was wearing full PPE was giving John the stink eye because John wasn’t wearing a mask and was coughing and such. According to John, the man was flat out staring at him but not saying anything. God bless him, John looked at the man, after a good nasal snort, and said, “It’s not COVID. I’ve been HIV positive for 10 years and I’m having issues with that.” John said the guy was about to do back flips to get away from him. Of course, this is not true.

I share this example because it shows the lack of a filter and empathy my husband has. I believe this is related to his TBI. Thank the lord that John seems to keep comments like this inside when I am out with him. I would be mortified. I said to John tonight, “We don’t know his story. Maybe he is severely immunocompromised or has something else going on.” Basically, telling John that he shouldn’t of been so crass.

The second thing which I heard about today but happened at the lake a couple of weeks ago. John and a friend went on a guy’s trip fishing. Both John and the friend are diagnosed through the VA with the infamous TBI/PTSD rating. Both are combat vets. They were launching the boat and saw a man nearby also getting his boat ready. The man was wearing a hat or shirt that said, “Operation PTSD. Heavily Medicated for your Protection.” This really bothered both my husband and our friend. John asked the man if he served. The guy said yes, that he’d served in the Air Force in Qatar during the first Gulf War. John was in that war too and said, “Hmm..I don’t recall there being any direct fire occurring in Qatar.” The guy agreed, saying, “There wasn’t; but there could have been.” John essentially told the guy that they didn’t appreciate him wearing the shirt because it’s things like that, that give guys with the ratings of PTSD a bad rap.

Who knows what that guy experienced or didn’t experience in his time in the service. I tend to agree though. Why flout your issues, opinions, and whatnot in that way? It is generally in bad taste. Something like that can’t be taken in a good way anyways. For guys that actually saw combat and experienced trauma, when someone wears something like that and does so to scare others into thinking they are a bad ass, it is uncalled for and extremely disrespectful to those guys that might actually be able to call themselves a bad ass but are gentlemen enough not to. Or, to those veterans that suffer from PTSD type issues (nightmares, inability to sleep, sensitivity to loud noises, hating events like July 4th, avoiding people, and more) but who are trying to deal with their issues. Things like that cheapen their ordeal and foster fear from civilians who are aware of PTSD and know about veterans experience with PTSD symptoms only by what they hear on the television, which is generally sensationalized.

Who knows though. Maybe that guy also has a TBI and doesn’t make great decisions because of it. Again, we don’t know other people’s stories. I wish most of us would try harder to simply be kinder to each other.

Vision Issues

On a trip earlier this week to see some family in the Houston area, I was discussing with my aunt about my uncle not being able to see his car’s head’s up display because he wears polarized sunglasses. He had no clue it was a feature on his car until she pointed it out. A simple oversight.

This got me to thinking about John’s own issues with certain things and having to wear sunglasses and other prescription glasses. I think I have touched on this subject in other posts but I don’t think I have a blog post all its own on the topic.

John has to wear polarized sunglasses and special prismatic, prescription eyeglasses. He wears these glasses as a necessity because of his TBI. He did not have to wear them before and had near perfect vision pre-TBIs. Things that get him include:

  • Bright sunlight and glare
  • Fluorescent lights (found in most US stores)
  • LED lighting
  • Strobe and other club type lighting (not seizure inducing for him, thank goodness)

If he doesn’t wear the eyewear he becomes symptomatic and cannot function well. There have been many a time we have either returned home to get his forgotten glasses, left earlier from a place than expected because he forgot his nighttime driving glasses, or left a store or venue due to lighting.

Not so long ago, we were at an indoor mall or someplace like that and were trying to order lunch from a fast food place. Their menu was lit in such a way that he could not read the menu with his sunglasses on. He was wearing the sunglasses because the lighting was too intense without them. The menu appeared black. Assuming that there must be something there and because I was looking at it with interest, he took off his glasses. He immediately comprehended the menu but also immediately started getting overloaded because of the lighting. The glasses immediately went back on. In this instance, he didn’t want any other food option at the food court so I read the menu for him and ordered for him. Not a big deal but if I had not been there, he would not have been able to order on his own.

He tells me that post-TBI, he wears the sunglasses inside stores because he can now see waves of lighting trailing down and out from all the fluorescent lights. He describes it as a “shimmery waterfall.” Things appear blurry and he loses his balance. I can only imagine how disorienting that would be. The effect triggers a stabbing headache.

He wears prescription prismatic eyeglasses. Without them he sees triples. So, I look at the moon and see one moon. He sees three moons, almost like a kaleidoscope. He has this vision issue at all times but it’s very noticeable at night. These glasses have been a life saver and weren’t prescribed until 2017, 7 years after the last catastrophic TBI occurred.

We have to be adaptable with our plans based on situations. John’s entire body and mind lock up and he cannot move or function if he is around club type strobe lights or other types of flashing lights. This includes emergency vehicles and is one reason he was medically retired. We don’t encounter situations like this much anymore because we don’t go out to bars or clubs or concerts where that type of lighting might be. (Not sure how much of that is us adapting to his new limitations or if we’re simply middle aged and, dare I say it, old.) In the rare instances we do, I have to grab his arm and guide him away.

Any of these situations when he doesn’t have his glasses or has to take them off, include me helping navigate the situation to varying degrees. I find being attentive, patient, and adaptable are key. He gets frustrated at the need for help (while grateful for it too) and always needs to quickly find a quiet place to sit, usually cupping his head in his hands and groaning. If we catch things quickly, he can usually continue on after a few minutes rest but for a shorter amount of time than if it had not occurred. In other words, each rough instance makes his little Nintendo life meter get lower. We have both learned how to monitor that and adjust plans at a moments notice.

The mall or shopping adventures are especially hard for him. I have learned that going shopping without him, especially if I need to browse, is better, all-be-it lonely. I have also changed into an “attack and kill it” sort of shopper, which I was not before. It has its pros and cons.

It’s Been Awhile, A Reminder

If there is one thing John does that can get under my skin, it’s when he feels inclined to remind me that he “is brain damaged.” I’ve looked at him before and said back, “What makes you think I forgot about that? I’m very well aware of that.” I, of all people, don’t need that reminder. However, things came to a head for our household this past week. It was a good reminder for all of us that he does have a brain injury and struggles.

The past month has been a very busy time for us and full of transitions. Those things combined lead to a slippery slope of symptomatic fuzzy and bad brain days for John. It’s honestly been awhile since John and I have both had so much going on that we both lost track of his abilities.

I suppose saying I’d lost track is not quite right. I kept watching John and all he has been juggling and adding to his plate and thinking that I was surprised that he was seemingly handling it all reasonably well. Finally though, he broke last week. It was one of those reminders for him and me that he can’t manage multiple things without repercussions. Even for me this time, even though I sort of saw it coming, it was a let down that he has this TBI. I hate feeling helpless. Then, I get irritated when I can’t let out my own frustration at his inability to see the train wreck about to happen. I get frustrated that he can’t manage his time better and just get it done. I get frustrated that this happens repeatedly and in similar ways.

I can’t recall what it was that I’d been doing that afternoon but I came home in a really good mood. Bouncy and ready to have a good evening with John. But, he was in a foul mood. It was an immediate buzz kill. I can’t even recall what it was that set John off — probably a call with the VA. It doesn’t really matter. It was an oppressive, what the hell, sort of feeling. I became frustrated too. I’d had a good day but couldn’t share that because John needed to vent and needed help sorting out things. Help he needed but was not yet willing to accept. It is so irritating when he does that. I want to help but can’t because he won’t let me. I know he needs my help but he won’t accept it. I nearly blurted out something like, “well, just enjoy wallowing then.” Those types of comments are better left unsaid. They are not useful nor kind and are honestly childish.

In the end, I let him vent and rage for the time he needed to get it out. We were able to get some sort of a game plan together for the long to-do list. He did accept some help. Many of the things he needed to do were things I could not help with but he finally started to incorporate Eva and me in and we were able to help. By the end of the week, we were all tired but in a better place, I think. At the moment, he is on a fishing trip and Eva and I are visiting family out-of-state. I’m hoping he gets some recovery time on this trip but we will see. When we all get home Sunday, he could still be amped up.

Time and the ability to get back into a routine and schedule will do wonders for John. There’s always a few times each year when things come to a head and this was one of those.

Thank You for Getting It

One of my best, lifelong friends surprised me the other day by texting and asking if a time would work later this summer for her and her family to drive out to see us. They live in another state, about a 12-hour drive away. She, her husband, and their 2 youngish kids are coming. I am thrilled. It’s been too long, COVID aside, since I’ve seen her, much less her “boys” (husband included there).

When she first texted, she let me know right off that she will plan to stay in a hotel or VRBO. I also think this is a good plan as it will be easier and more comfortable for everyone, but, when we were confirming timing, I let her know they were welcome at our place. I texted, “That works for us. If you have trouble finding a place to stay, let me know. It would probably be less stress for everyone if you find a place but we have a guest room for you and Bill. We can put the boys in the TV room. Keep me updated.”

She wrote back, “Looks like there’s a few options nearby. I don’t want to put you out and I known John won’t be able to handle the level of chaos my boys bring.”

I responded, “Sounds good. Thanks for thinking of John and getting it.”

She responded with, “I totally understand. I’d rather us have an enjoyable time instead of flaring his TBI and PTSD. My boys are so loud and rambunctious it’s just a bad combo.”

I share this conversation because the relief I felt when I realized my friend really does get it was palpable. I don’t have to explain anything and worry that, even after an explanation, there may still be hurt feelings. I’m used to needing to offer apologies and rationales for John’s missing presence or unusual behavior with friends and family. I knew of the burden of this responsibility before but today made me acutely aware of it.

Thank you my dear friend for thinking of us and being selfless enough to just accept me and my family for what we are and the craziness we bring. 🤪

Scissors Galore

I was scrolling through my Facebook feed last week and another “TBI Wives” person posted this:

She got sick of listening to the “childish rants” of her husband not being able to find his charger. She went to the trouble of buying these extra chargers and even labeled them!

I got a real laugh from the post and commented about how relatable it was. In our house, it’s scissors ✂️ … has been for years. Also, coffee travel cups and water bottles, nail clippers, and measuring tape. We have purchased an abundance of various types of scissors and they inevitably get misplaced. I’m not going to name names here because, in the past, it has been me and I’m sure Eva is not blameless but, there is a third guilty party in the house who has memory issues and multitasking issues and gets distracted easily. Hmm….

I’ve started turning into quite a stickler for taking a few extra moments to be sure to put items away where they belong after I’m finished using them. (My step-dad would be laughing out loud at this, as he was always trying to get me to just finish up a task fully before moving to the next.) I’m sick and tired of being blamed for the loss of items, or, in the least listening to the rant. If I am self-assured that I know I put it away after last use, then I can’t be blamed.

If you’ve read a previous post about John’s difficulty organizing our garage, of which he’s been complaining about for months, well, you’ll be happy to know that he has FINALLY started! And, making huge headway! A moment of sweet vindication occurred today. He came inside, found me, and proclaimed that he’d found a pay load of scissors. I held my tongue and did not say some bitting thing but smiled wide and said, “That is great! Where did you put them?” “In the sink” (to be washed) was his reply. Now that we are swimming in scissors, does anyone need a pair? 🤦‍♀️

We don’t own a label maker but this prompted me to research the cost of one. Too much for me to break down and get one but, I’m tempted. The “home” of all the scissors has become a single drawer in the kitchen, which is not useful when I’m in my basement office and need some. Having a label maker might truly be a handy device. I suppose a Sharpie would do the trick too.

We have more actually, that are still MIA.